To make this dream happen we used the crowdfunding site PledgeMe to find a community of people to fund the book. 885 people pledged $85,288 towards making the book happen. THANK YOU to all those of you who pledged!
The Super Power Baby Project is being photographed by Rachel Callander, an award winning photographer and Mum to one of these precious children. Rachel has experience, expertise and passion for telling the stories of Super Power Babies. The book will create and communicate a language for us to talk about these children without negative connotations. It is uplifting, positive and brings people together encouraging and celebrating diversity in their own communities and families.
THE BOOK - [pre-order it here]It will be hard covered, have beautiful paper, approx. 150- 175 pages and 275mm x330mm. There will be photographs of 75 children with a varied range of syndromes and genetic conditions. If the project reaches its target we plan to complete most of the photography by Christmas this year. This will enable us to write, design and print the book in time to post it to you by mid 2014.
Here are some comments from Super Power Baby parents:
Q: Tell me about your child's super powers:
“Tymon has many super powers. He has the ability to lift anyone's mood with just one laugh. He is able to melt hearts with his incredible smile which is also contagious. Tymon is able to break down the many stereotypes associated with down syndrome with just one hug. His cuddles are to die for and just one will have anyone coming back for more. Tymon is so brave he is often pricked and prodded for blood and not one tear is shed. Instead he just smiles his way through it.
His biggest superpower however was his ability to make our family complete and his power to teach us to love unconditionally.”
Angela G - Parent of child with Down Syndrome
“Kaahu's beauty and spirit are amazing. I can't take her out without strangers stopping to say what a beautiful baby she is. People are always telling me how calm and content she is. She makes eye contact with strangers and smiles. It is very, very rare to see her object to anyone: she accepts everyone who comes into her world with her open eyes and cheeky smile.
Kaahu's super power is that she's perfect. She sleeps through the night, doesn't cry and always wakes up with a smile.”
Gina C - Parent of child with Prader-willi Syndrome
THE TEAMRachel Callander: Rachel is Mum to Super Power Baby Evie Amore who passed away in 2010 at the age of 2 ½ years. This gives her insight into the lives of Super Power Babies and their family's triumphs and challenges. This book is a long term dream of Rachel's which has been years in the planning. Rachel holds a Bachelor of Fine Arts (Photography), is an Associate of the New Zealand Institute of Professional Photography (ANZIPP) and in 2011 was awarded the title of New Zealand Wedding Photographer of the Year at the annual NZIPP Iris Awards. www.callandergirl.co.nz
Sam Callander: Dad to Evie Amore and passionate backer of the dream. Sam is the project manager and behind the scenes admin nerd. In his day job Sam works for the Economic Development Agency in South Canterbury helping businesses succeed. This project combines his passion for helping people achieve their dreams and his belief that all children are born awesome.
Evie Amore Callander: The message and movement of the Super Power Baby Project is Evie's - it was her idea. Evie was with us for 2 and 1/2 years and in that time taught us so much: unconditional love, strength, living in the moment and most of all about Super Powers. In a world obsessed with charts and measuring children's progress from day zero; Evie taught us that being unique is totally awesome and that a language of 'super powers', (i.e. the great things people CAN do and who they are as people) is so much cooler than some of our current attempts to describe distinctiveness. This applies universally to all children.